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A woman’s journey from patient harms to restoring trust in health care
Read moreAfter Allison Kooijman got an unnecessary medical procedure that left her disabled, she used her experience to help patients and care providers heal together after harm.
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Brain imaging research brings new hope for people with life-altering condition
Read moreThere’s no single known cause for myalgic encephalomyelitis, also known as chronic fatigue syndrome. And there’s no cure. That’s why patient partner, Kati Debelic, worked with neuroimaging scientist, Xiaowei Song,…
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Making a real difference: People who are incarcerated help peers get immunized for COVID-19
Read moreDuring the pandemic, only 60 percent of people in custody wanted to receive the COVID-19 vaccine. Researchers Sofia Bartlett and Pam Young worked with people who are incarcerated to change…
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It isn’t just a simple faint: Patients weigh in on negative effects of recurrent fainting episodes
Read moreHow does frequent fainting affect people’s daily life? Researchers in the Fraser region worked with patient partners to find out.
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The Methods Clusters: Lessons in methods research
Read moreThe Methods Clusters researched the “how” of patient-oriented research for 5 years. What did we learn? What questions remain? Amber Hui, Stirling Bryan and Danielle Lavallee discuss.
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Patients change how we do research, move hearts and minds
Read morePatients are often overlooked when designing health research projects. Researchers in BC wanted to change that.
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New learning tool helps patients shape health research
Read moreHealth researchers in BC now have access to a suite of online educational modules that help engage diverse people in health research.
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Broadening the circle: BC SUPPORT Unit provincial team build a shared vision
Read moreBC SUPPORT Unit team members gathered in Vancouver on June 28 and 29 from all parts of the province.
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Reach BC Launches POR Database
Read moreNew additions have been made to the REACH BC Platform, expanding its existing search directory.
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How do we measure what matters to patients… well?
Read moreWhat is patient-centred measurement? How do we improve it? Why is improvement important — and what, exactly, do we need to improve? The Patient-Centred Measurement Methods Cluster’s work studied these…
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Beyond pronouns and rainbow logos
Read moreThere is always more work to do, to update our infrastructure, processes and organizations to keep up with and align the values we hold today. So how will you know…
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How do we do diverse patient engagement — better?
Read moreWhen the Patient Engagement Methods Cluster first asked stakeholders what it should focus on, something that came up again and again was: “diversity.” So, we created 6 interactive modules that…
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Do we need to translate “Knowledge Translation Science?”
Read moreThere’s a growing scientific community studying how research evidence is used, and how we can use it better. But our language may still be tripping us up. Knowledge Translation/Implementation Science…
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Why are pragmatic clinical trials important for our health system?
Read morePragmatic clinical trials aim to bring more real-world conditions into the study sphere. In doing so, pragmatic trials aim to address patient-centred outcomes, diversity and inclusion issues, generalizability of study…
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Rethinking how we design clinical studies
Read moreMost clinical researchers who come up with their ideas do ask others if it’s a good idea…. but the trouble is they ask other clinicians, and not potential patients. So,…
